The Other Side of Morgellons

"I'm just getting started"

Category: morgellons disease

The Scrub, Enzyme and Powder, One-Two Punch

boxers

A one-two punch is an especially forceful or effective combination or sequence of two things. In this case there are three things Involved:

Denorex

Gold Bond medicated powder

Natures Miracle for dog dander

When I had those itchy hard type of lesions…the kind that itched to the bone what I would do is scrub them with Denorex Extra Strength Shampoo (with menthol), dry them well then sprtiz with Natures Miracle for dog dander and then sprinkle the Gold Bond powder on them.  For me this was not just to get away from the itch…it actually healed those rough itchy callous that formed on my skin. It took a while but while it was healing it really did take the itch away, which is priceless. When they did start itching again..I went to the bathroom and repeated the whole process. It does get better.

The best price on Denorex is at wall mart  (in the States). I think it was about 6 dollars. At a drug store it was around 10 dollars. If you are in the EU or the UK you can get it at Amazon here. You can get the Gold Bond powder at almost any drug store and some larger grocery stores in the states.

I am sure there is a British and European version of this sort of medicated powder. You are looking for Zinc and menthol in the ingredients (in my opinion those are what made this powder work for me).

Natures Miracle is a company that makes enzymes cleaners and topicals for pets. Enzymes were a big help to me. I used various topical enzymes and also took a lot of digestive enzymes.

Enzymes are something I swear by.

There is an enzyme product  call Kleen Green that many with Morgellons are using and reporting good results. I have not used this product myself but I want to mention it because enough people have given it good reviews.

The next post is about menthol crystals for an itchy environment, click here.

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Lemon, Baking Soda and Head & Shoulders

head and shoulders

This is simple and it REALLY worked to start breaking up the stuff in my skin. When I started using Lemon, Baking Soda and Head & Shoulders, one word comes to mind….

“PROGRESS”

When I started washing with this combo, it was after my lesions had healed but I was left with horrible skin. The infection was still there , it was just under my skin. When I used this combo it was the first time the stuff in my skin started to budge. After I washed with it, the coconut oil worked even better to crack that “stuff” out of my skin. It was very drying and harsh on my skin but after rubbing the coconut oil in and the healthy skin started emerging…I DID NOT CARE. It was rough going at first. More goo and junk was coming up and I would have to wash it AGAIN. The goo would be stuck in the fine hairs on my face. I would wipe it off with a towel and then rub the oil in and then wipe again. Then I would have to wash my skin AGAIN. Then massage oil in until it cracked off. It was nightmare but the feeling of my heathy skin emerging was so encouraging that  I kept it up. In between washings and oil rubbing my skin stayed smoother for longer periods of time. I call that the chicken skin phase and it lasted for a while. For a few months it was really bad. After about six months I knew I was home free. After one year..it left completely and never came back.

It was really simple and it was really hard. The key was to be relentless, merciless, and un-freaking-stopable. The simple part was the three ingredients. The hard part was doing it, day in and day out. Sure I felt sick and I was tired but I drug myself to the bathroom and I did it. Sometime up to 5 times a day. Then hit it with the coconut oil. That goo that emerged on my skin would harden if I let it set there. So I didn’t let it sit there and in meantime I prayed there was a bottom. I can not say that your skin will behave as mine did but I do say with sincerity it is worth a try…that is if you’re in that “phase” (the phase being chicken skin land).

What I did was keep a plastic bowl next to the bathtub. I put a tablespoon or so of baking soda in it and then mixed a generous amount of shampoo…maybe about 3 Tablespoons, then squeezed a half lemon into it. When you mix it around it gets nice and foamy and it’s actually a pleasure to use (the first three times that is). After I rubbed it into my skin I took the lemon half and turned it inside out. That made a nice scrubber on the skin.

For the next post about the one-two punch click here.

Coconut Oil

 coconut-oil

Coconut oil is something I would suggest to anyone both for external and internal use. I don’t want this post to be a bunch of regurgitated facts so I would suggest you research this one on your own if you feel  inclined to do so. I know I am not the only one that found that coconut oil helped my skin. It’s delicious too and it is just as helpful on the inside as it was on the outside for me.

Rather than telling you what I think you should do I will just talk about how I use and used it:

“Wow, this coconut oil stuff is helping me…a LOT!”

I started out just using it on my skin and was happy when I began to notice that it was helping to heal my skin (again, no miracle cure and it’s a long haul). When I got out of the bath I used it on every bit of my skin (problem areas and non-problem areas), without fail. I should also say that I noticed when I followed it with a rub down of olive oil the stuff tended to crack out of my skin better.  I achieved the best results when I first took my herbs then took a good borax, baking soda, and or epsom salt bath. After a good soak and a good scrub, I would then first apply the coconut oil and then olive oil. It would get a little tiring massaging after each bath but the pay off was worth it. I would also put a few drops of either lavender or tea tree oil into the mix. I say this a lot but I swear by taking herbs and or supplements and or meds about 20 minutes before the salt borax bath. It seemed to push the stuff (whatever it is)to the surface of my skin. Then after, I would hit my skin with the oils. This is how I think I got it out of my skin and body.

“I think I’ll start smearing this stuff in my eyes and nose”

Yes! I massaged it into my eyes and coated the inside of my nose with it. I am STRICTLY talking about COCONUT oil here. It doesn’t sting your eyes at all but it does feel a bit strange at first. I do feel it helped to heal my eyes and sinus area.

“Well what about my mouth”

I started using it to oil pull and it not only whitened my teeth but pulled a lot of goo out too. I also noticed it had a calming effect. I tried to do it for the suggested 20 minutes but have never made it. Too much stuff came out and I had to spit it out and go for a second round. I NEVER swallowed it and you probably shouldn’t either. If you feel like this is something you might want to try,  you can learn more here. I encourage you to look around and do your own research. I will say my mouth and teeth were a wreck. They’re not anymore!

“I wonder if it will help my scalp the way it helped the other stuff”

Yes, again! I coated my hair and massaged it into my scalp and put a bag on it and l slept like that. This was a bit messy so I didn’t do it a lot. I was pretty lucky  that my scalp issues went away rather quickly. I did at one point have nodules ,lesions, itching and hair loss. The scalp seems to be a big problem for a lot of people with Morgellons.

“OK, I’m sold, I’m just going to eat this stuff”

That’s pretty much how it went down too.  When I prepare my food now I use  coconut oil in as many ways as I can find. It’s an excellent oil for high temperature cooking, even better than olive oil. It doesn’t break down from the heat. I want to keep this post simple so I won’t get into the huge amount of ways or the why to bring coconut oil into your life and body but here are some ideas.

These days I mostly use coconut oil internally.  I have to say with most things that I found that worked on skin they worked better if I ingested them (maybe because it’s not just a skin disease…just saying). Obviously that’s not possible with a lot of things but it is with coconut oil. That’s why coconut oil is a big winner in my opinion.  Now that I am healed I use it only occasionally on skin because I find it to not be a moisturizing as I like. As a skin healer I can not say enough about it.

Coconut oil can be found at only a few large grocery stores. You’re best bet is to get it at a health food store or order it online.

For the next post about how I got the plaque and goo out of my skin, click here

Introduction to Morgellons Comfort Care

comfort

In this next series of posts I will be talking about some products and things you can make up and do at home to help specific problems.

Mostly this will be about external application and because Morgellons is NOT just a skin disease I will have to call this series palliative care or more attractively “comfort care”.

Many of you already know about this stuff but please remember there are people out there that don’t.

Also those suffering with chronic illness don’t need a load of information thrown at them at one time to frustrate and overwhelm them.

Therefor each post will be short and simple.

I will not be trying to blind you with science.

None of these posts are the only way or a cure or any of that.

All of the ingredients or products I talk about you can look up on the internet or ask about in the comment section.

If they will help you or not I could not say for sure.

I can say that they helped me and I will only be talking about things that I know helped me.

In the comment section below it would be nice if others put up things that helped them….not what you heard, not what you read or not what you think but rather what really helped YOU.

This is called anecdotal evidence and it is not being represented for anything other than that.

There are some out there that insist on science facts and facts are beautiful but the fact of this matter is that the scientists haven’t come up with a whole lot on the subject of Morgellons.

Until they do let’s talk about some self care that might help some specific problems and at the very least make you a little more comfortable.

That is not to say that some of these things could help you finally resolve the problem in that specific area. In the comment section let’s try to keep it to the subject in the post. That way if one were to stumble onto a post looking for help for their specific problem they won’t have to comb through irrelevant information.

Here is where I have to say that none of this is to be misconstrued as medical advice.

I am not a health care provider.

I am not telling you to do this.

I am merely writing about myself and what I did to recover from Morgellons.

The first in this series is about sinus care and you can get to it by clicking here:

Sinus care

Dear Morgellons Disease

Dear Morgellons Disease,

Just checking in.  How are you keeping yourself these days? Still rocking people to their knees?

You know way back when I thought that I didn’t like you enough to hate you, well that’s not absolutely true. You probably have known all along that I have a secret respect for you. In your toughness you honestly gave me a bigger run for my money than anything ever has. I would like to think I did the same for you.

You have been a strange but fascinating presence in my life for sure, changing my life in ways that I never thought you could. You helped me to figure out what I wanted to be when I grew up and sometimes I feel I got more from our relationship than you ever did.  Scratch that. I know I took more from you than you could ever take from me.

What you really did for me was to clearly define and separate the men from the boys, the contenders from the school girls and the general crap in my life that had to go.

Funny enough it was you that stuck right by my side as I learned some brutal realities concerning the fact that loyalty was something that happened in stories mostly about dogs.

Since you have been gone for a while now I sometimes wonder if I will ever see you again. I hate admitting to you that I have let this concern me, but you already know so who cares.

For a long time I wanted to get even with you and as you know I had planned to kill you. I spent a lot of time plotting and planning the various ways I would accomplish this and you know well I wasn’t shy to carry these plans out. I don’t need to mention to you the various attempts I made on your life. I don’t feel bad about this, it’s only fair, you did try to kill me on several occasions. That’s  OK and I’m cool to call it even if you are.

I guess the real reason I am writing this letter is to tell you that I’m not angry with you anymore but don’t get too comfortable with that idea because I can not guarantee that seeing your  face again will not elicit microbicidal thoughts!

This could be a good place for our relationship to stay, this mutual respect we seem to have developed.

Love, Tina

I almost forgot. This is for you.

kids-flip-off-th

The Dog Stays in The Picture

The company of a dog seemed like a good idea because I was becoming more withdrawn than ever. I knew I probably wouldn’t be able to walk  him a lot so I had a good-sized dog run built and planned to drive him to the dog park for play .

To the rescue people I said I would foster any dog old or ugly but under no circumstances did I want a puppy. They told me he was about 2 years old.  What he was a hundred pound puppy.

When he first came into my house I told him to sit. He ran the other direction and stopped only to pee on the floor. I yelled “bad.”  When he was finished peeing he turned and charged me and ripped the fluff balls off my scarf as he flew by.

When he wasn’t bouncing off the walls, he was insecure and watched every move I made . He slept with one eye open and would get up and follow me to the bathroom in the middle of the night.

For kicks and to drive me mad he would push a toy under the armoire and start crying when he couldn’t get it. I would stop what I was doing, get the toy out and go back to my desk and just as I sat back down he had it under there again.

He knew he wasn’t allowed in the bedroom alone and so he invented this routine where he would walk from my desk to the bedroom door then back to me then to the bedroom door. I would look up after hearing the tap, tap, tap on the wood floor and say “Don’t.”

It sounded like this:

“Tap tap tap tap tap tap tap.”

“Don’t do it.”

“Tap tap tap tap tap tap tap.”

“Don’t do it.”

“Tap tap tap tap tap tap tap.”

“Oh my God you’re driving me crazy.”

I broke down and cried and he would come to me and push his head under my arm and quietly sit there.

I had an appointment so I put him in my bedroom to keep him safe. When I got back, I found he had chewed a hole in my favorite silk blouse and a hole through the bedroom door and then climbed onto the table to lay on my clean clothes. bad dog

Remembering that I had not filled my prescriptions I decided it would be safer to walk the one block to the pharmacist as I was exhausted and I already been in two car accidents.

I brought the dog along and noticed how sweet he was to stay right at my side and go as slow as I needed. It was more like he was walking me along, keeping an eye on me.

For his safety and my sanity I bought a big crate.

It was one of those collapsible metal kind and I put him in it the next time I left the house. When I came home he was on the couch sleeping, cut up and bleeding from pushing his way out of the crate. With him he had my silk blouse.

The next time I had to leave the house I took him with me. While driving on the freeway I found out that wind shield wipers flipped him out. From the back seat he lunged and head butted the window shield. The window cracked and the rear view mirror was knocked off. Driving home in the rain with no wind shield wipers, no rear view mirror and a cracked window shield, I was pulled over. The police officer asked for my ID and insurance and told me he was pulling me over for expired tags. He asked me where I was coming from and if I had been drinking. I broke down and cried and tried to get the words out. I was trying to say I had been at the emergency room and that I had staph and that I was sorry I didn’t know about my tags and that I had forgotten to renew. He handed back my papers and asked if I would be OK to get home. I said  yes and then he said  he wasn’t going to give me a ticket but try to get my tags taken care of. That made me cry even more….

The next crate I bought was solid plastic and I put the dog in it the next time I left the house only to come home and find the crate door open and him sleeping on my bed. To figure out how he did this I pretended to leave the house then crept back and looked in the window. I watched him in his crate for a while but nothing happened except that he was wagging his tail.

I decide to “leave” and  tried to be as authentic as I could at looking like I was leaving the house. I gathered my keys, my phone, my hand bag and wandered around for a while then forgot what I was doing. I looked at the door and flipped out a little at the idea of leaving and then set my keys down and lost them. After searching around for a while I found my keys but couldn’t find my hand bag. Then I remembered I wasn’t really going anywhere so I wouldn’t need it need. Would the dog notice this small detail?

Finally I pulled myself together and made it out the door, got in the car, drove a bit down the street, parked and snuck back and looked in the window. What I saw was the dog licking the latch through the crate door. What I am telling you is that he was licking his way out.

After that I started zip tying it shut. Not one zip tie but many and that put an end to Houdini dog.

I searched on-line for dog training tips and books.

When he was bad I tried dropping a bag of coins on the floor to make a loud noise and all he thought was that it was the most incredible thing he had ever seen. He grabbed the bag, raced around, throwing into the air and was soon looking for more things to move that would fall and make noise.

He learned how to push things off the coffee table. He would watch them fall and then look to see my reaction. I would say to him “Ok genius that was awesome, now get away from there.”

The squirt bottle routine didn’t work out either. He would just bite at the squirts of water. He loved it!


Next he focused his attention on getting into things rather than out.
tub dog

I watched as one by one he learned to open cabinets, drawers and boxes. He would sift through the contents and pull things out that interested him. He went for the little things and he really liked rubber bands a lot. He did this funny thing where he hooked the rubber band on his middle claw and pulled on it.  He would come to me and offer it. When I went to take it he would gently pull it for a game of mini tug of war.

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Here we enter what I call his “making it a dog shaped world” phase. He was calming down a little bit by now and mostly was just looking for a place to take a little nap to think up his next angle.

His taste changed often and as his need for variety increased so did his ability to come up with something new and weird each day.

He would cram himself into anything curl up and go to sleep.

He used the chair to get onto the table and then from the table he walked across the counter to get to the top of the fridge so I moved the furniture. It went on like this move for move, like playing chess with a giant real life snoopy. 206284_1012173282029_7504193_n

His asset was his ability to redefine himself for the situation at hand. As my health declined and friends departed, he watched all this.

More and more I was waking up at night soaking wet, sometimes shivering some times burning up often sleeping through the day to wake up only to need to sleep again, It was difficult to get up for the bathroom.

I was sleeping and worrying a lot. The appointment I had with the infectious disease Doctor was so far away. How long could I hold it together?  I tried to remember the date and where I was on my bills and how my garden was dying and the dog was neglected and then I would start sweating again and fall back asleep.

I knew I should have been thinking about giving him up so he could have a better life but I was selfish and terrified of where my mind might go without him.

When he started developing lesions like mine that was my signal from the universe that we were in it together until the end. I am sure I made that up but that’s OK.

The dog was sick with me and he got better with me. Then he flew away with me and that’s the story of how the dog stayed in the picture. The End.

The Other Side of Morgellons

Hello. I had intended to make a video to sort of catch up. I thought a video would be more personal and warm. Well the words of what I meant came out but the video (my camera) did not cooperate. I am also having some internet connection problems. I know the video is blurred and it is weird-looking but I was happy with the dialogue. It was what I meant to say (and that doesn’t always happen). Please bare with the poor and strange quality. It seems things are breaking faster than I can keep up. I don’t let those things bother me much anymore.

As far as new posts go, I had intended to go right into food and diet. I have decided to take a little detour from that. I still plan to get some great food posts up but I have decided to wait until the holidays pass and also to get my kitchen out of boxes. I do a pretty good job in my make shift kitchen but it will be nicer and easier for me after the re-model and holidays.

I have also decided to change the title of this blog. Originally I purposely chose to leave the word “Morgellons” out. I had my reasons, as you might understand. I have changed my mind on this subject. I have done so because I feel putting Morgellons in the title will accomplish several things. First of all it will make this blog easier for those with Morgellons to find. Also I do not want to even slightly appear as though I am participating in the delusion that Morgellons does not exist. I know those that suffer know how very real it is. Morgellons has a name and many people are living with it and this blog is about living with Morgellons and coming out the other side.

My Morgellons Routine: Supplementation, Post # 5

I consider this to be the second most important part of what keeps me well (first being my diet, which is not strict, just good, real food!). I will get into that in the following posts. For those of you that worry when you hear the word “diet” don’t worry, mine won’t scare you (unless you can not part with artificial or processed food).

When I talk about supplementation I am including what I do for immune support, detoxification and to control my microbial load. A lot of important things I rely on my diet for. I don’t supplement a huge amount because I get a lot of stuff from the food I eat (more on that in the next post).

In my supplementation routine, I have had it down to this for a while so it is just that, “a routine”. I would like to explain a little more about why I take what and what I feel it does for me but because I want this to be a fluid, clear and easy to understand post that is more about how I take my supplements throughout the day, I will make other posts more specific to the supplements themselves.

Also this is my current routine that I do to keep general good health and is not as focused on antimicrobials and specific problems I had in the past (when I was very ill).

OK……………..

When I wake up in the morning the first thing I do is walk to the fridge where on top I keep my bottle of lysine and NAC (N-acetyl cysteine) and inside the fridge I keep my Liposomal vitamin C and MSM water (Methyl Sulfonyl Methane).

MSM is organic sulphur. I do not take MMS which stands for “Miracle Mineral Supplement”, which is  chlorine dioxide .  There’s a big difference between the two.

If you need clarification on this and the difference between the two, do not hesitate to ask in the comments below. I myself happen to love MSM and find MMS kind of gross (but that’s just me).

I take a shot of MSM water (yuck….I hate the taste but the tangy lipo C takes that taste away). I take my NAC and Lysine and wash that back with the liposomal Vitamin C (I will also do another specific post on homemade liposomal Vitamin C because I think it is so amazing and exceptionally sustainable). I follow that with a glass of water. I do this first thing in the morning because NAC and Lysine are amino acids and to be taken on an empty stomach.

I make some tea or coffee and think about what I want to eat. I then put samento tincture drops in my tea or coffee and have that with my breakfast. I keep the little bottle of drops next to the kettle so it is very easy to remember. I am not exactly strict on my anti microbial herbs anymore. In the past I was very strict. I am at a maintenance point now. The samento I take to keep my Lyme in check. I will say that cats claw is an excellent broad spectrum anti-microbial (and I took a lot of it in the past).

If I feel like I need it I will buckle down and do several weeks of the herb of my choice (more on that later). I will say that I always return to oregano oil. To learn more about how and when I take oregano oil click here:

:https://livingwithmorgellons.wordpress.com/2012/10/25/oregano-oil-wild/

Around lunchtime is when I think about my supplements again. I go into the pantry where I keep chorella powder and cilantro tincture (I make that too and I will put a how to post up….it is so easy and el cheapo). In a paper cup I put about 2000 mg. chorella powder, ten or so drops cilantro tincture, add juice and drink.  I should also say I eat a lot of fresh cilantro. In the past I always made sure to take chorella all through the day. Now I just take it once with the cilantro tincture.

Now that I have that out of the way and I am free again to not think about taking supplements or a “something I gotta do!”.

I keep my sub-lingual Vitamin B-12 on the widow sill and take that whenever I want or think about it. It is very easy. It’s a tiny little pink pill that I put under my tongue. If I forget I don’t really care…I will take it when I think about it.

Later in the afternoon I start thinking about taking my main round of supplements. I have these bottles all sitting together in the window sill and I don’t have a super specific time or worry because these do not need to be taken on an empty stomach. These supplements are triphala, boron,  kyolic garlic (sometimes 103 and sometimes just plain aged garlic), milk thistle extract, and astaxanthin.

Easy and done (almost).

Later in the evening I take krill oil, vitamin D, ubiquinol and Pudin Hara Pearls (mint oil). Lately I have been taking these every other day just to see if I feel any different, I feel fine so far. When I am settled into bed is when I take my probiotic, right before I sleep. In the past I took much more probiotics. I keep yogurt, kefir and fermented foods in my diet and also take Mulkosan during the day so I don’t worry about the probiotics as much as I used too. I focus more on eating my medicine in the way of delicious, real and as clean as I can get food. Also what I do not eat is important. I am in no way strict however. I will write more about that in the following posts and also get into some food strategies that anyone can apply (if they wanted to).

Also I would like to say that I don’t go out and pay a fortune for little bottles of supplements. When ever possible I buy a bulk bag and cap it myself if needed. I do a lot of home made tinctures as well. Also I consider enzymes to be very important and especially when I was very sick. I eat a lot of high enzyme foods like pineapple and papaya. I also take enzymes caplets when I feel like and sometimes extra in a day if I feel I need them. I also buy green papaya powder (great enzymes) and cap that. Link here for info and where to get a good deal (1 Lb. for 22 dollars):

https://livingwithmorgellons.wordpress.com/2012/08/30/enzymes-on-the-cheap/

For things like NAC and most all amino acids you can get a better deal buying them in bulk pouches from a website geared towards body building (those body building guys take their amino acids seriously!). Myprotien.com in the UK has killer prices (like 100 grams of NAC for 7 pounds).

Triphala is a tried and true ayurvedic herb combo and you can get it for a really good price, if you look for a bulk powder. It is not an expensive herb. Chorella and MSM, you definitely might consider buying in bulk powder. Of course on the lipo C I think making it is the only way to go. All of the things I talked about on this post I will do some individual posts with info, links and strategies as to how get smart buys so you can stay in it for the long haul and protect your health. To pay a bunch of money for a couple of tiny bottles is setting yourself up to go broke and worse, not have the stuff to go the duration. It really is a long haul. Morgellons can get really expensive. This is why we need to be clever and economize. If you can’t afford pro-biotics then you might want to start making kefir (and guess what..I will tell you how).

There are all kinds of ways to get things you need in a better,more affordable way that will fit into your life. The important thing is SUSTAINABILITY.

I am going to say out loud right now liposomal vitamin C has served me well. It is about 20 cents per serving when I make it myself. I felt an immediate difference and Vitamin C is so helpful in so many ways. I buy a pound of Vitamin C powder at a time and use it to take orally and also mix with baking soda and liquid soap for a lovely foamy facial wash. I hope you are starting to see an ongoing theme here…sustainability. Doing good research and bringing things in slowly that you choose to treat yourself with is the way to go.  Saving money in any area you can so you can put the money into other things you might need.

I think I made it clear in an earlier post how I feel about protocols. Do not mistake this information I have shared about my life and health as a protocol or medical advice or something you should do. Also if you have not read the introduction to this series or the posts that lead up to this, please do so. In the introduction is where I say that none of this is medical advice. I am not a health care provider; I am just a cook that is talking about herself and what she does to keep herself well.

You can get to the introduction by hitting the link below and it will take you through the posts that lead up to this one. Very soon here i will get the next post up which is of course about food. Food can have tremendous healing abilities and I believe become very important when dealing with chronic illness. Ok, I think that wraps that up. It’s half past late so night night all. T

Link here if you want to go to the introduction of this series:

https://livingwithmorgellons.wordpress.com/2012/11/28/introduction-my-morgellons-routine/

My Morgellons Routine: Bathing, Post # 4

If you have not read the prior posts in this series please go to the introduction. From there it will take you through the three posts in this series that come before this one. It important that you read the introduction because there I give an explanation as to what this series is and also that’s where I say that none of this is medical advice and all that. It also has links to take you through the posts that lead to this one. It’s an easier easy to get through the posts in order too. Click here to get to the intro: https://livingwithmorgellons.wordpress.com/2012/11/28/introduction-my-morgellons-routine/

As I continue on this series of posts, I am now going to write about what I do for bathing. I just want to be sure that anyone reading this knows that I am well aware that Morgellons is not just a skin disease. I did very much to recover my health and most of it involved diet, immune support, detoxing, and lowering of my infections with both pharmaceuticals and plant-based medicines. I did a lot in the past to get to this point where I keep a routine up to maintain my health.

My skin care was a lot more involved earlier in my illness.

These days I bathe once a day. I run about six inches of water in my tub and add a half cup of borax and or several cups of baking soda. I don’t touch water without something in it like salt, Epsom salt, borax or baking soda. The first thing I do is brush my hair in the tub. I have long hair and I just like brushing it out in there. My hair is nice and thick again but when I was very sick I did lose a lot of hair and had little bald areas where I once had lesions. It has all grown back in now.

I usually use liquid Miracle soap because I like the fact that it is natural. Denorex extra strength with salicylic acid and menthol is not as natural as I like but it really works. Especially if you are at that stage where you have a film or plaque like feel to your skin. The other shampoo I use on and off is Head and Shoulders. I have found the generic to be just the same as the name brand. In the early days I did a lot of bathing so it payed to buy the biggest bottle of the generic.

I also like a good old-fashioned bar of hard milled real soap. I alternate between the above soaps and shampoos and wash my hair and body with all of them. I don’t like Dr Bronners liquid soap because if I add something alkaline to my bath it tends to cause the Bronners soap to saponify further leaving a residue. I don’t think it is great soap and I don’t use it at all anymore. It’s watery and cheap feeling to me. It’s not inexpensive either! I am not a cheap person but it has to work if I pay for it. I also want to point out that part of my whole routine, like buying borax in bulk, making my own laundry soap and household cleaner is very inexpensive. I do this because the stuff I make works better, it isn’t stinky and fake and I also save a huge amount of money. That saved money helps pay for the other parts of my routine, like my probiotics, enzymes and my other supplements. That laundry soap recipe I listed a recipe for is non toxic, it works and it is about 25 cents a load (if that even!) and the enzyme cleaner is practically free.

Ok, back to my bath routine.

Which ever soap or shampoo I am using I will put some on a soft bristol hair brush (the kind old men use) and scrub in circular motions and always towards my heart. From my left foot, up my leg and to my heart and then again from my right foot up and to my heart. I do the same for my arms starting at the tips of my fingers. In the past I had such trouble and pain in my hands that I always give extra attention and circular scrubbing to my hands. The same for my feet! Also on my feet I use a metal foot polisher. It keeps my feet soft and smooth. In the past my feet were a mess. I also like to put a bit of lavender and or tea tree in my bath. In the early days I had to use much more of all of this stuff. I needed much more borax and salts in my bath. I did notice though that if I took my supplements about 20 minutes before my bath and loaded up with the afore-mentioned items that when I got out, if I massaged coconut oil into my skin and then a layer of olive oil, I could really get a lot of build up out of my skin. It seemed to almost feel like I was wearing it down. Those very strong baths I had to keep up for months. I am not saying anyone else should do this or that it will necessarily help you. I am only saying what I did and what helped me. I would also like to say that the baths helped me get through some really difficult physical pain. After a good hot strong bath I could feel a little lighter and got a little break from my stiff and sore body. It helped reduce inflammation and also really helped to take the edge of that horrible sick weak feeling I had. When I just couldn’t take it anymore, I mean when I felt I was sick as I could be, I would load that bath up with salts and or borax and gently wash and massage my skin. Often I would have to nearly crawl to the tub and summon all my strength to do it, but I was always happy afterwards that I did it.

I know I said I was going to write only about my current routine but as I think of those past days and how very sick I was, I can’t help but remember how the baths saved me. I continued them after my skin cleared and they just made me feel better and better. I am sure that the sweating and the salts and baking soda helped to draw something out of me. I also liked and still do add ginger powder to my bath once in a while. It really makes me sweat. I would step right out of the hot ginger bath right into a sheet then go under the covers and I would continue to sweat. Once, after one of those strong baking soda and ginger bath I was able to massage a lot of black tar looking stuff out of my knuckles. I was actually shocked because as I did that the swelling went down on my hands. The amount of swelling that went down was so much so that a ring I always wore in a certain finger was then too big. After that day that I rubbed that stuff out of my knuckles the swelling never came back in my hands. I kind of want to cry when I think about it because it was such a dramatic and massive relief. My hands were so swollen I often could not use them. Sometimes I could not even feel what I was trying to pick up.

In the past when my skin was horrible and I was working hard to get the stuff out of my skin I had to use a lot of fresh lemon juice mixed with liquid soap and baking soda. I had to wash my face many times a day sometimes and massage it for hours with oils to get the build up out. If you have a bio film problem or trying to get the smoothness back to your skin, you might want to try toning with Mulkosan (lactic acid and whey). You can dilute it with half water. Misting it on your skin also works. It did sting my skin. At first it will felt a little tight and red but as I massaged oils into my skin the Morgellons “stuff” slowly cracked away and out. I had to keep that up for months and months. Also, drinking Mulkosan helped to get my GI back on track (a big part of caring for your skin is caring for your insides..which I will talk more about later).

I would really like to emphasis that all this bathing was coupled with internal care with a strong emphasis on immune support but also anti-microbials, detox strategies and diet. I will elaborate as much as I can on some of those things as this series of posts progresses. Again I have to say that this is just what I did. My recovery happened over months and months that turned into several years. I was very dedicated and worked hard. Diet was and is very important for me.

But this post is about bathing so I will get into the other stuff in the coming posts. After bathing I dry off very well and smooth coconut oil on my face and even in my eyes, nose and ears. I love that stuff. After that I will smooth a few drops of olive oil on my face as well. In the early days I smoothed a generous amount of coconut oil from head to toe and then after that olive oil. This was at times one of the most gratifying parts because after that strong bath (and remember I took my supplements 20 minutes before I got into the bath), I could rub those oils in and the hard stuff in my skin would crack out. Sometimes there was a goo on my skin, mostly on my face. It was so sticky it caught in the little peach fuzz hairs on my skin. Sometimes after rubbing the oil, I had to wash my skin again with liquid soap, lemon and baking soda to try and dissolve it. Then I would go back and massage another layer of coconut oil and olive oil in and it would crackle out. It would break up like little tiny pieces of sand on my skin. My god, those were weird and horrible times. Oh and my nose. I really don’t want to think about the amount of stuff that came out of my nose. Ok, I will just tell you..this might be happening to you anyway and you will understand. There was such a build up in my sinuses and it would get so hard that the bath would loosen it just enough that I could cup my hands to my nose and blow hard..the stuff came out like a projectile. Sometime these chunks of stuff were as big as a giant pee or a half of marble. This is no exaggeration. That stuff that came out used to be full of fibers..red, blue, and black mostly, sometimes other colors but not very often. In that stuff that came out of my nose were also some of the stranger “shapes”. I am sorry I did not mean to gross you out, I am just giving an honest account of my experience. I will say that after the baths loosened the stuff in my sinuses and I was able to get it out, after wards I felt a kind of relief that I can hardly say how wonderful it was. It took a long time until my sinuses cleared. I am very thankful that nightmare is over.

After bating these days I don’t always put the coconut and or olive oil all over..but I always do on my face as that was my last hardest place to clear from. Also it is my face so I do want to give it a little extra care. Another thing I do after bathing is rub magnesium oil into my lower back, stomach and thighs. I buy the big bags of flakes add water and some drops of lavender oil and make it myself. This is the way I get my magnesium and it is one less thing I have to take as a pill. Oh, I also put a little under my arms as a natural  deodorant. The magnesium oil also takes the edge off body pain, it also seems to comfort me and calm my nerves. Magnesium is good stuff for me.

I also use that multi purpose  vinegar, enzyme and borax spray I talked about earlier. I give my body a little mist. I also am in the habit of spraying a lot on my feet. After that I sprinkle a pretty good layer of baking soda on my feet and put my socks on over that. This makes me laugh a little that I still do this. I had a lot of problems with my feet before. The soles had this thick goop on them and I had hard patches and horrible problems with my toe nails. The baking soda smoothed my feet out. It took a while though. I still do it..I guess it’s just habit. All this I do is habit. I really suffered a lot when I was sick and a lot of this stuff I think I do just to have a secure feeling. It is true that I have made an amazing recovery but mostly I would say it was from my diet, immune support and supplements. I keep sprinkling my feet and doing my little tricks here and there just in case. Well, I think I covered my past and current bath routine. Oh wait, I wash my face with a mixture of baking soda and vitamin C powder now. I mix it 1:1 and put it in a little plastic tub  with a good lid. I keep that at the side of the tub. I buy the vitamin C powder in a big tub because I use it in my supplementation routine. On that note I am going to finish up this post and the next post I will cover what I do for supplements (I will probably get that post up tomorrow). Thank you for reading, best, Tina

Here is a video I did almost two years ago. I was still sick then but I was definitely on the mend. My apologies for not being very fluid in my speech.  Morgellons caused me to have many cognitive issues. I was a little surprised looking back at this video.  I have come so far and it is good to revisit those scattered days to appreciate how much better I am now. In this video my lesions had healed but I still had a long way to go to get my skin clear and also just to heal in general. I don’t do a lot of stuff I talk about in this video but I thought It might be helpful for those of you that are still working to clear your skin.  I hope you all are well tonight and you are in my prayers. T

Link to next in this series “My morgellons Routine: Supplemenataion Post # 5:

https://livingwithmorgellons.wordpress.com/2012/12/01/my-morgellons-routine-supplementation-post-5/

My Morgellons Routine: A Quick Clarification on Cleaning, Post # 3

Before I go into my regular bathing routine I want to do a little catch up and clarification on the subject of cleaning. It has occurred to me that because the first part of this series has so far only addressed a couple of cleaning issues one might think that I consider these points a priority. This is not true. I have never at any point been one to go over the top cleaning. The only time I really went crazy cleaning was when I had to stay in a temporary studio when I returned to Los Angeles to undergo my Lyme treatment. It was a filthy 100 plus year old building. It was six floors of humans, dogs, cats, mice, roaches, bedbugs and other various insects including flies, fleas and mosquitos. It was not well maintained (to say the least). The building was what I considered to be a bio hazard. It was disgusting but they took dogs and they allowed for a month to month lease and It did have a certain brown stone building charm. It was disgusting.

If you live in a home or building like that, I would say YES, you might want to try and clean or move. I know this is not possible for everyone. If you are a super slob with piles of junk everywhere I would say it might be a good idea to clean up your act. I have found a little organization makes everything in life much easier. I do understand that the nature of Morgellons makes it difficult for the Morgellons sufferer to keep things together (I was there).

I do (and will always) keep my sleeping area as clean as possible. I also like my bathroom to be clean. Other than that I am a half slob.  In my regular life you can easily find me covered in dirt, grease, food, paint or some other something from the many projects I like to do.

In my past and current life cleaning is about the last thing I will be wasting my energy on. I hate cleaning. It is the most boring, monotonous and uncreative thing that humans are cursed to do. Thats why I have some simple things I do. For those that clean from morning to night, I am only just glad I have better hobbies than them. In my mind, things like white carpet and pristine homes are just disasters asking to happen. Awk!  Ahhh….but to each his own

It seems that those that have tried the insane cleaning routine don’t seem to be able to report any kind of increased wellness. Mostly I hear them say they just became exhausted.

Something that has always been clear to me is that the itch and what ails me is coming from me.

I will tell you that most of my itch came from fibers in my skin. I know this because when I had that unrelenting itch, I looked at that specific area with a scope and found fibers there. I am not saying that there are not insects involved. I do know that bugs love me and they always have. This is the reason I keep my sleeping area very fresh and clean. I do not want to be dealing with dust mites. I don’t want to flip anyone out but do know this, bugs are everywhere (even on you). This is a fact of life.

To be clear, I keep my sleeping area clean because I spend a minimum of 8 hours of my life there every day. I also have a four footed shadow friend (my dog), so I keep my sleeping area as clean as possible. That’s just me, it is probably different for you. I just wanted to clear that up.

As far as “Nothing makes it out of my laundry alive”, I am more referring to dust mites and MOLD spores, which quite possibly, terrify me more than Morgellons and definitely more than Lyme. I still believe that it was my exposure to mold that brought my immunity down to a point that I became as sick as I did. Not everyone is mold intolerant or was exposed to mold so you will not be the same as me in the needs of your environmental routine.

While on the subject of mold I should say that because a tree fell on my house (literally) while it was empty some years ago, there was a temporary dampness problem here. Like I said, That concerns me. Mold is extremely toxic and because I had a past bad experience with it, I will not take mold lightly. That is the main reason I mist and clean my house with the cleaner I make (all three ingredients kill mold). I don’t have fibers in my house and believe me I have looked. I don’t even have fibers on me anymore.

I only wanted to be understood on that point in regards to how, what and why I clean.

I know I said I was going to be clear and simple in this series of “My Morgellons Routine” and I intend to be. I just started to get the idea that people might think I am some kind of clean freak or think I am trying to “kill” Morgellons in my environment, because I talked about laundry and the spray cleaner first. It is actually what I consider the LEAST IMPORTANT part of what healed me from Morgellons. I wrote about my laundry routine and cleaning first because I happened to be mixing up and restocking that area of my routine. In later posts I will be clear to say what parts I feel helped me the most and I promise you, it was not cleaning my house.

Thank you for letting me blab on there…OK…sigh….smile….as I gather my thoughts…

Morgellons is complicated and in sharing information there is a danger that some people will take what I say wrong or assume that what I do for myself will make them better. I do not want that to happen. We are all own selves, with our own lives and bodies and how and where we live are as unique and different from each other as the snow flakes are.

No one person experiences any illness the same as another, not even the flu treats people the same. This is why I am always clear to say that this is my routine. With any illness and especially something as complex as Morgellons or Lyme, I find it a mystery that anyone could think they have a protocol that works for everyone. The very word protocol makes me laugh. Protocol? It is a funny sounding word. When someone asks me my protocol I am always a little dumbfounded. I will never be some kind of arrogant person that thinks I have the answers that will help or repair anyone in their extraordinary, unique and mind blowing existence on this planet.

Still it is true that there are some basic and similar things that many of us that suffer from Morgellons have found helpful. There are also some safe, sound, tried and true strategies that help all humans to keep good health. When we share our stories and our lives, others can observe and try and adapt parts that can fit into their individual life.

For anyone that hasn’t read the posts before this one, please click here to start at the introduction. The posts are numbered for clarity after that: https://livingwithmorgellons.wordpress.com/2012/11/28/introduction-my-morgellons-routine/

Next post up is “My Morgellons Routine: Bathing Post # 4”.

https://livingwithmorgellons.wordpress.com/2012/12/01/my-morgellons-routine-bathing-post-4/